QUESTIONS? WHAT QUESTIONS?

I now had the unenviable task of telling ny mother that I had MS. Oh joy – because I had MS but not knowing what type I couldn't tell her much, I had some useful leaflets but she can't see well so they were useless, so I did try and explain, but she only heard me talk of the spondylosis and keeps saying to my children that I have not had my test results back yet so don't know what is wrong me!


Because she only hears and absorbs what she want to we decided [the we being myself and my son and daughter] to keep mentioning MS whenever the opportunity arose. I told her all about the MS nurse's forthcoming visit and what I knew, but she I still insisted to my son & daughter that I knew nothing yet.

Meanwhile I was being a good girl and taking antibiotics for the urine infection. I had been told that I would have to finish the antibiotic course and have my urine re-tested to ensure their was no infection left before I could take the steroids. This took two weeks, 1 week taking the tablets and another to get the results. All the time the steroids were sat staring at me, I'm sure they had their arms crossed and were tapping their feet.

One particular morning the MS nurses called to see me, two of them. The noisy dog was shut outside where she did shut up. I had received more information from them during the interval between the consultation and the visit, but still had no questions.

What I really want to know is what will happen in the future? No one person can tell me that, it is a personal illness that depends upon one's individual situation. My only experience of MS has included wheelchairs and total incapacity.

By this time I had discovered the effect of crowds, Two days after my hospital visit I came down with a head cold and realised that the muscles that are used to cough aren't working properly plus the head pain when I did 'cough' or sneeze was intense, I think that pain is due to spondylosis not MS.

My best friend became the internet, forever looking up this symptom and that one, The main two sites I turn to are MSTrust and MSSociety. 2 charities that are very hard-working, knowledgeable and effective. I think I have downloaded every leaflet they produce. That's not to say I've read them all, but I've got them ready for when I want to.