Even though there were personal differences, the OT did focus my mind, the last visit made me realise that the present level of disability was permanent and this visit made me look at what I need. So a fold down table for me to eat my meals from instead of a tray on my knee and use the lap top on has been ordered and should be here this week, also we have bought a tumble drier [thank you Irish Lottery] because I can't get outside, the only problem being space so we have had to put it in the porch.
I have received a date at the beginning of next week to have the low dosage chemotherapy. The only downside is that I now realise it will not not make me feel better just hopefully prevent me getting worse. I then have to have a bone density scan in a few weeks but hopefully that doesn't involve needles of any sort.
The district nurse has been twice this week to change my catheter but the chemist has not sent the new catheter and associated items. That is not surprising since the local pharmacy has changed hands from a small private concern to a large chain. The chain has supermarkets which seem to only sell brand names and if you mention an item or special offer that has been advertised the answer is always 'this branch doesn't stock that item'.
So getting a prescription delivered is a pipe dream. I complained last week about non-delivery of medication and the necessity of certain medicines when I was told I should order the repeat prescription by phone, not online. Why have an online service? I have sent an email to the people who maintain the site, so I will see what their response is. There is the choice of GP surgery or chemist so all the site needs is another choice of delivery putting on the site. We shall see!
Anyway back to the nurse, she may come again today with all the bits and pieces, if the chemist still won't play she will try again tomorrow.
As to the future, when my mother does go into the care home, we will have all her furniture to dispose of. One item of which is an electric rise and recline chair, and, as I have difficulty sitting upright, it might be useful to have it re-covered in a different colour so it matches my living room, which is NOT BROWN. We have had no indication of when the move might be.
The nurse eventually was able to collect the things she needed a week later then she originally intended and so was able to make the change albeit a week late!
I am really fed up of gradually falling to my right hand side when I'm sat and it takes a lot of tiring effort to stay upright even though I now have the table I mentioned before.
Tomorrow I go for the chemotherapy, apparently I will be there about 5 hours, but why do people [my daughter and Alan] think someone should be with me? I am taking my Ipod that I am charging up now and my nintendo which will be charged up as soon as I find the charger!
So more on the hospital day and being a pincushion on the next update.
