LIFE AS A ZOMBIE

I’ve decided I must be a Zombie, I walk, talk and act like them.  They walk as if sleepwalking, which is better than I can do. The new medication is to blame for my symptoms, instead of taking two tablets of one medication which causes dry mouth I now take seven tablets of three medications that cause dry mouth! Fun.

The OT has been and left me very depressed.  The Council aren’t going to do any extra work, leaving me in the same situation with regard to the hall and my feet etc.  I suppose that even though I am on the urgent list it will be another 16 week wait for any work to start.

I am sure the extra stress created by the situation and the OT makes me worse, her view was that my carer should do everything for me, taking away the little bit of independence I do have!  When independence was mentioned, her response was a shrug of the shoulders, so the message I got was that Alan should be with me 24 7, I would soon be needing mental health care if he was, I need at least some independence, in fact I enjoy some time alone.

Although I’m waiting for work to be done, delivery of a new front door [identical to the one in situ] has been tried for the second time!  Apparently, so we were told, it was ordered three years ago, we’ve not been here two years yet and it was empty for about one year!   Does that mean the ordered work will take three years? Answers on a postcard please to ...........

I’ve worked out that I have spent 5 months unable, to lock the door! Whenever I speak to anyone I am told that due to holidays etc it will be at least 2 weeks, it’s a good job the dog’s bark sounds as though she is bigger than she actually is.

I’ve not been feeling too good lately, I can only stay awake for about half an hour, and I seem to need more help to do anything.  Due in part to the medication and in part to MS, I think. Also alcohol is banned completely, which is no great problem because they make me feel sick anyway but having no alcohol means that I have more carbonated drinks which then leads to dehydration and in turn to a blocked catheter and associated problems.  One day I will be sorted!

I’ve had another OT visit when I was informed that nothing could be done about the narrowness of the hall except move!  After I refused moving AGAIN I was virtually told to put up and shut up, so I have.  

The NES team visited and were completely different in their approach as usual.  I am now the possessor of an electric bed that alters the height and moves to various positions, all at the push of buttons.  The only problem is I can’t keep hold of the control and I can’t get out of bed once the various parts are up or down.  So me in the bed and the control on the floor isn’t a good combination! Of course I only have double-sized sheets so, although fitted, they needed to be tucked underneath well.

The bedding has arrived, including a single duvet, so now I should be more comfortable.  I had, until now, used the king-sized duvet, not good!

So sleep should be better from now on, I will let you know.