WHY IS HELP SO SLOW???

Today is another day spent unpacking [Yes STILL] as Alan tries make everywhere wheelchair accessible. The bathroom is now accessible WITHOUT the footrests [which has led to my foot becoming trapped I now have a slight graze on my toe and some bruising] I have found the hall stays in more or less 1 piece without the footrests on, that tells you how narrow the hall is.

The Neurological Enablement Team [NET] have just rung me and will ring to make an appointment for her and the MS Nurse to come and evaluate me. Maybe they can do something about my balance etc. I think that Alan will have to change around the Living Room so I am not in the wheelchair all day.

I have tried sitting on the sofa, I managed all right sitting down but when it came to me getting up again it was a different story.  No matter how I tried and with which hand, I couldn’t pull me up! So the lesson learnt from this was I can only be out of the wheelchair either in the bathroom or when Alan is in. You see I do learn a lesson virtually a day.

A letter from NET, they are coming to assess me next Wednesday, I wonder what they will suggest?  Probably nothing useful. Why don’t all these support teams let me wallow instead of being so upbeat about everything all the time?  What they either don’t or don’t want to understand is how much energy it takes to do anything at all, even get out of bed at times.

My mother is 88 today and has spent all lunchtime telling me how ill my cousin is, my cousin who is 67 next month and has had MS for the past 40 or so years.  I really do not want to contemplate that I might only last for another 8 years so SHUT UP MOTHER!  PLEEEASE

Today we have had a storm, and for the first time since we have lived here the dog was trembling.  I had an appointment with the foot specialist that had to be cancelled because of the weather, this was the second appointment because I was at the hospital for the time of the first.

I have spoken to the adaptations department of the housing department and was informed that an assessor to see about the work will be about another fortnight before he is here so I can’t lock the door when no-one is in, which means my insurance is invalid etc. - Great!!!